Austin keeps us on our toes!!!

Last Saturday night I dropped Austin off at my mom's so me, Bill and the girls could go to church. My mom thought he looked a little out of it when we dropped him off, I thought he was fine b/c he had a GREAT day of playing, smiling and being happy. In the back of my mind, I know he can literally change in the blink of an eye. He was going to prove this to us tonight. Church service started at 6:30 and my mom called me as we were parking to go in and said Austin had fallen asleep in the floor and hadn't moved. I new from there I would need to check my phone to see if she called throughout the church service. About 7:15 or so I checked to see and I had a missed call with a voicemail from my mom about 7ish. My heart just sank to my toes b/c I new it couldn't be good. She basically said, Austin had a seizure and it wasn't stopping on it's own and she had to give him his emergency medicine to stop the seizure. When I talked with her she told me she called 911 and they were on their way. He hasn't been this seriously sick since October. I was scared for him. After I talked more with my mom and found out he was stable I went and got the arrangements made at home that I needed, packed my bags and headed to Mo. Baptist b/c the paramedics needed to make sure he was stable before they transferred him to Children's. At Mo. Bapt. they accessed his port (a very sterile procedure) and drew some labs and took a chest x-ray. When we left there at 2:45am we understood he didn't have pneumonia, that is white blood cell count was high, and he had the possibility of having an infection in the trachea. His Dr. started him on an antibiotic. I watched him closely on Sunday and he seemed better. Monday morning I got phone calls, from Mo. Bapt., his pediatrician, and Children's basically saying he had pneumonia, a positive culture from his port(which can be deadly if it is in his blood stream) and that we needed to go back to Children's ER to be reevaluated. I said ok, got our bags together and headed back to the ER. So they reaccessed his port, drew more labs and repeated his x-ray. After being told he had pneumonia, his scan was fine and apparently when Mo. Bapt. accessed his port, somehow his port was contaminated b/c of possibly not staying as sterile as possible during the procedure. He did however have the infection in the trach, which if his body is stressed, it can cause him to have a seizure. My mom and I hope next time that there is a situation with Austin, that the EMT's will take him to children's no matter what and hopefully there won't be so much confusion with Austin's condition. I am SO thankful he is doing so good and that the infection in the port wasn't what they thought it could have been. Austin can change like this at any time and it is scary. I think this time was harder on me, b/c it has been since last October that really anything this serious has happened and Austin is always there to keep us on our toes. I am so thankful God has put such a special person in my life that has touched my heart in ways I can't explain!


THIS SONG MAKES ME THINK OF AUSTIN SO MUCH:

I'm down on my knees again tonight I'm hoping this prayer will turn out right See there is a boy that needs Your help I've done all that I can do myself His mother is tired I'm sure You can understand Each night as he sleeps She goes in to hold his hand And she tries not to cry As the tears fill her eyes
CHORUS: Can You hear me? Am I getting through tonight? Can You see him? Can You make him feel all right? If You can hear me Let me take his place somehow See, he's not just anyone He's my son
Sometimes late at night I watch him sleep I dream of the boy he'd like to be I try to be strong and see him through But God who he needs right now is You Let him grow old Live life without this fear What would I be Living without him here He's so tired and he's scared Let him know that You're there
CHORUS
Can You hear me? Can You see him? Please don't leave him He's my son